Sometimes I think I would be better off if my disease wasn't treated, just because the meds required can seriously kick you in the head. Three medications that cause drowsiness! Three! Trying to concentrate through this crap is rough.
Now that that's out of my system...
My thought for the day is self-esteem.
I've come to hate the word. It's usually used when trying to make people live out our Horatio Alger fantasies. We want every disabled person to climb mountains, and blame it on low self-esteem when they don't.
It goes beyond that, though, and yes I'm still thinking about
Fruits Basket. There's a character in it who is possessed by the spirit of the cat. According to the legend, the cat was tricked out of his place in the zodiac by the rat, and is a bit angry about it. In the manga, the person possessed by the cat has an alternate form, one that looks and smells like something rotting.
Over the centuries, the people possessed by the included animals have come to discriminate against the cat, even to the point of imprisoning him for life. They use him, sometimes openly and sometimes less so, as a kind of pivot point for their self-esteem. However bad they may have it, however difficult the curse may be to bear, nobody has it as bad as the cat.
Notice that it wasn't enough to let the cat just be what he was, to just have this revolting alternate form. They had to make a point of making his life hell, even incarcerating him for nothing more than being the cat.
I was thinking about this, both in terms of being disabled and being a sexual abuse survivor. In both cases, it hasn't been considered enough to simply let me be. The process of getting SSD is humiliating, and the amount is enough to live on only if you're ruthlessly frugal or have a second income source. Not too much second income! Or you won't get any benefits at all. The most common approach to a second income is the Department of Health and Human Services, and they're worse than the Social Security office in terms of making you feel like feces.
Being a sexual abuse survivor brings us into the Damaged Goods issue. What's essentially PSTD gets you labeled a psycho chick, good for nothing but easy sex, or even too crazy for sex at all. Healthy relationships? Don't make me laugh! Anything can be done to you without penalty, because you're no longer human, not because of any crime you've committed, but because of a crime committed against you. You're considered somehow damaged inside, that this even happened to you at all.
It's really not the crime itself, it's the idea that really bad things only happen to really bad people.
Either one, disability for sexual abuse, is like having an alternate form, one that repulses people, but the fact that there's more to it than that leads me to consider what it means to feel good about oneself.
There's a scene in
Fruits Basket in which the man possessed by the spirit of the dog explains to the heroine just what the cat is to the rest of them, and how their relationship with the cat simultaneously lifts them up and drags them down. It's good, if you're going to be possessed, to not be the cat. That fact makes the possession maybe a little easier to take. After all, it could be worse. You could be
him, shunned, scorned, and locked up for life.
But in order for the other twelve to see themselves as better, they have to make the cat worse beyond the simple fact of the alternate form, and that drags them down in ways that more than one character in the manga has to face up to.
It isn't just a manga phenomenon, though. I actually fall into three "cat" categories: disabled, sexual abuse survivor, and single mother, so I have a clear view from the inside. Mostly, I'm thankful that there are no legal penalties. I can live pretty much as I choose, within the limits of my means. I'm grateful for that, daily.
I've had to think about the self-esteem issue a lot, for obvious reasons, and while the "at least I'm not X" route is incredibly tempting, it's also dangerous. What happens if X suddenly rises above you?
For an example, I look once again to Oprah Winfrey, who takes enormous crap simply because she's the kind of person everybody is supposed to be able to look down on in this way. A fat black woman who was raped as a child? Come on! Under no circumstances is such a
thing supposed to be a multi-billionaire in charge of one of the world's biggest media empires. So what do people do? Tear her down. She may be one of the most philanthropic celebrities we have, but she's not giving enough, or to the right causes. Her show sucks. Her magazine sucks. Her book recommendations suck. Whatever it is, no matter how well it does, it isn't really good enough, not because of the merits of the outcome but because of what she is.
The legal barriers are down, but the social barriers remain because when we look to build ourselves up, we look for those who are worse off than we are.
It's my objection, really, to Pollyanna, whose father said of crutches found in a Christmas barrel, "Well, at least we don't need those!" Or words to that affect. So what, you're supposed to feel good about yourself because you're not disabled or injured? Conversely, if you're disabled or injured, are you supposed to feel like crap about yourself? Or are you supposed to look for someone even lower on the totem pole than you are?
And then make an effort to see to it that they stay good and low, so that you can continue to feel good?
It's one of those things that, on the surface, seems beneficial but has unpleasant consequences down the line that can far outweigh the short-term advantages. It's an insecure place to be, for starters, since your up-ness is entirely dependent on someone else's down-ness. It puts you in a position of persistently being an ass to someone, just to show that you can, whether it's in the obvious form of physical abuse of someone not in a position to fight back, or in the more subtle form of passive discrimination, like avoiding someone from a different culture because you believe that the entire culture is beneath you.
There's also the fact that once you start playing this game, you become somebody else's one-down, and there's always the risk of them taking active steps to keep you down. This can range from verbal sneering to full-on violence, depending on the situation, but the unfortunate bottom line is that you'll never really be on top.
To return for a moment to
Fruits Basket, they may have been better off than the cat, but those possessed by the twelve zodiac animals are still possessed. Hating and abusing the cat doesn't improve their lives in any material way, something figured out early on by about the last character you'd expect. Then again, he wants something very badly that hating the cat won't get him.
I'm not sure that's the only way out, though. It's certainly one way out, to want something that no position on the one-up/one-down ladder will get you, but I don't think it's the only way out. I think it's also possible to be honest-to-God happy about some parts of your life, like, even if your life were happening in a status vacuum, you'd be thrilled with this.
This is true of me. It's one reason why I'm taking the blasted meds. Parts of my life simply rock, and I want to be there for them as much as possible. I also want to find some way to work with the not-so-rockin' parts as best I can.
Some of you are probably thinking that the meditation practice I took up a few years ago has addled my brain. You would probably be right. That can have even stranger effects than the meds. But I've considered, from several angles, the possibility that one of my biggest barriers over the years is the idea that my cat-related issues disqualify me from really enjoying my life. By "enjoying my life", I do not mean in a getting everything I want sense, but in being okay with what happens, whatever that might be.
It's not karma when things go bad. It's not what we deserve when things go well, either. Life happens, the way the weather happens, without our agency because it's too big of a thing for us to control, and we cause pain when we try. Our attempts to force the natural course of events don't end well.
As I look around me, I wonder if being okay with that is one of the more perverse things you can come up with. I mean, be happy? With whatever's happening? When you're a disabled, meds-addled single mother who's sitting in what her son calls a "steroidal lawn chair" writing at 3:00 am with a dusty parrot preening itself on her left boob (since it's the highest available perch)?
Are you insane?