It would be very difficult to walk away from all of that unaffected.
It meant sitting down and thinking about where I was and where I was going from there, and if I think there was one fault in my therapy, it's that nobody told me the truth. Nobody told me that the damage was so extensive that much of it was probably permanent, and that it would, in turn, do damage to a great many different kinds of relationships, not just with people but with phenomena. Nobody told me that while my moods could be managed, I could never be cured.
Nor did it teach me that an extremely abnormal life might be a very good one. The idea was to make me as normal as possible, or perhaps to seem as normal as possible, not to make me as stable and content as possible. Only one of those was realistic. Guess which one it was?
It's like pumping someone full of chemo without telling them that the cancer has metastasized, only this cancer isn't fatal. It changes you, slows you down a bit, but it doesn't kill you. Chemo, however, can. It's a notoriously brutal regimen, appropriate only when the alternative is death. I'm not going to die, so I've decided to take the needle out of my arm and see what my life really looks like.
One of the things about that life is that the bar was set very low right from the start. For me, having a stove that turns on and off when I want it to, or consistent running hot water, or an indoor toilet are a matter of being spoiled. I also don't have to plant, weed, dig up, chase down, gut, pluck or skin my own food. I have warm clothes that fit.
No one hits me. No one hurts me. I'm as safe here as it's possible to be in this world.
I have a car, a library card, internet access, and Netflix. And Mabinogi.
I'm grateful for the bits of weird luck that have come my way, not the least of which is my son. He would have been suicidal stupidity to attempt on purpose. As it is, I'm glad we survived more or less intact.
I'm grateful for where I live. I have room to work, and I've barely had to turn on the heat this fall.
I'm grateful that I don't have to date. I can choose to or choose not to, but I'm not compelled in either direction.
I'm really grateful that I can live alone. That has not always been so easy for women, even as recently as my mother's generation, when getting a bank account or signing a lease meant having a man's name on the documents.
I'm also really grateful that I'm not part of the Boomer generation, with it's perpetual quest for youth. After having watched large chunks of my mother's generation go what I consider to be literally insane in their their battle with time, I'm quite happy to pull on my Mom jeans in the morning. Give me another twenty years, and all of my waistbands will be elastic. I'm even contemplating getting a housecoat in memory of my grandmother.
In the time I've written this blog, there have been countless loaves of fresh bread, new songs learned on the guitar, many hours spent reading and petting my bird, even more hours spent in dungeons with my son, almost as many hours spent decompressing afterward, a lot of anime and British murder mysteries watched, Christmas trees taken down and put up, birthday presents opened, endless experiments with hair conditioner conducted, laps swum and miles driven, as well as the more mundane tasks of dishes, laundry, vacuuming, making dinner, cleaning up after the birds, and hounding my son into cleaning up after himself.
In other words, it's been a pretty ordinary life all in all, and it's in that last paragraph that the answer lies. I'm not going to be the next J.K. Rowling-style single mother success story; I'm not good enough. I'll never have a normal job, either. I'll never be sure what to do in social situations. I'm not going to be perfectly frugal and keep a proper budget. I'm not going to be "not like that" to men, who generally consider me damaged goods, good enough for now, but not good for anything else. I won't be a miracle cure, either. I will live with this thing until I die.
These are really big, big things, the things that cut me out of large chunks of what people consider to be normal life. Fixing them would make a major difference. Unfortunately, trying to fix them is also an enormous energy suck that, for the most part, has gone nowhere. Even worse, it's taken away from other things that might have been a more productive use of that energy.
The first indication that the big things might be less important than the little ones was when I got pregnant. I didn't have time to fix all of this stuff. I had nine months, more like eight by the time the pregnancy could be confirmed. I was going to have to tackle this task head-on, with every deficit in place.
Needless to say, more than one person has seriously considered trying to have him removed from my care!
After all, what do I have to offer him? Near-poverty? Dependence on SSDI? Introversion? An anxiety disorder, managed or no? The physical limitations imposed by my disease? Crappy social skills? Night-owl tendencies? The psychic poison of a woman who's been the victim of a sexual crime or two?
Turned out I had more to draw on than I thought. I won't pretend for a second that I've been a normal mother, but we're having a lot of fun, which is part of what leads me to wonder what might happen if I took the same attitude toward the rest of life.
When I went into this, I had goals. I wanted to:
1. Write more consistently.
2. Get well.
3. Go to bed earlier.
4. Procrastinate less.
5. Keep a cleaner house.
6. Be more responsible financially.
7. Learn social skills.
8. Make more money.
At this point, I write even less, depend for what energy and mobility I have on a drug that literally leaves a bad taste in my mouth, go to bed even later, procrastinate about as often, clean up only slightly more than previously, spend exactly as I ever have, and go out even less than I did before. I also make less than before.
Along the way, I discovered that the happiest lives are also the hardest, that human beings have a limited capacity for self-control, and that some aspects of social behavior are both innate in general and absent in individuals, just as any other sense can be absent. I found that certain psychological problems can be an asset at the same time they're a liability. I saw the downsides of the path my generation as a whole has followed, to the point where I no longer have any desire to catch up.
Looks like failure, doesn't it.
What was I expecting, though, to become someone someone else who never lived my life? When my life is actually a normal part of life? We might not be happy that that's the case, but it's true. All of it is true, the bad as well as the good, and if I try to be anything other than the sum total of it, I'm a liar even if I never open my mouth.
Ever since I was a kid, I've been "a fighter". It stops here. Maybe not all at once, but piece by piece, moment by moment, because I simply do not have that kind of time. It's not just that I don't have time to wait until I can change the world, I don't have time to wait until I can change myself. I don't have time to wait until my disease isn't active. I don't even have time to wait until I stop grieving, not just for the dead but for those who nearly died.
This blog also stops here. Among other things, I have a regular website that desperately needs attention, but it isn't just that website. It's other things. I've been documenting a process that very much wants to go on autopilot now.
I also want to use the time I've spent blogging for other things. I know I only post twice a week, but that's enough to make me wonder how other people post once a day! Writing isn't a quick process for me. It takes time and a lot of painstaking editing, which means this takes up a lot of space that I want for other things.
As far as I'm concerned, I'm working on the wrong kind of keyboard right now.
And what more is there to say? That the human brain is fallible? That both reason and memory are flawed?That the world is what it is, and people are what they are? That our wishes, goals, thought projections or other exercises in fantasy are mostly distractions from what we have right now, and our commitment to them can blind us to the opportunities actually in front of us?
That the idea of improving ourselves and our lives is detrimental because of that blinding? That in our quest for something better, we overlook or ignore the value of what's there, and even develop a habit of self-rejection, and that habit can in turn develop into a second habit of paying more attention to outside rejection than we should? That faking it until we make it can create far more problems that we already have? That we don't create reality, we either accept or reject it?
And finally, that we are complete idiots to reject it? That rejecting ourselves, if only to undergo a series of psychological make-overs and plastic surgery, is a zero-sum game, and rejecting life itself is worse?
That 99.9% of what masquerades as self-improvement is exactly that kind of rejection?
It might seem like I've spent the last few years wallowing around in things I should just get over, and in fact it all started as one last, gigantic effort to get over it. Ironically, the tool I chose, meditation, has unpredictable effects, and in this case, I found myself stuck on two related questions. What if it's all so true that there is no getting over it? And if so, how bad would that really be?
What would life be like if we simply got over everything?
The answer, I think, lies in a line from Emily Dickinson:
Power is only painReject pain, and you reject power, the power you really have instead of the power you wish you had, and like it or not, getting over something, putting painful experiences behind you, isn't power. It's cowardice. It's a fear of pain that constricts our lives until we can no longer breathe. There is nothing more imprisoning than the idea that a good life, a happy life, is one in which the experience of pain is succesfully avoided or minimized by our own efforts, and in which success is defined by our own vision and achieved by our own will.
Stranded, through discipline,
Until weights will hang.
Because the world is so much bigger than that, and we are so much smaller.
And that's the best possible thing.



